Deinstitutionalization

No national public health care policy in the second half of the twentieth century better reflected the changing cultural perception of patients in mental hospitals than the policy of deinstitutionalization. Deinstitutionalization was among the most daring—and controversial—social engineering experiments in the United States after World War II. Following the development of antipsychotic drugs in the 1950s, which effectively treated the most extreme manifestations of mental illness, and the social rights movements of the 1960s, deinstitutionalization called for long-term patients confined to state hospitals to be released and serviced by community-based mental health treatment programs and to live in low-cost public housing, ideally staffed by experienced counselors. Many state-run mental institutions, which had been operating under limited budgets and subjecting patients to substandard care, then shut their doors.

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Overview

Before World War II, state hospitals isolated mental patients from the community; their illnesses were perceived as incurable and it was thought that patients were prone to violence. After the war, however, many decorated soldiers continued to suffer psychological trauma, and the medical community reexamined their perceptions. They began recommending short-term outpatient treatment over long-term custodial care. Reintegrating mental patients into the community would, in turn, help counter the effects of long-term confinement, which included loneliness, low self-esteem, and feelings of helplessness. Patients would regain their dignity, sense of freedom, and empowerment. Then mental hospitals, many of which were overcrowded and subjected patients to various forms of abuse, could be partially or completely closed. Offering treatment services within the community began to destigmatize mental illness and allowed patients to become active members of the communities from which they had long been restricted. Economic incentives for the state was a major factor in deinstitutionalization. The release of treatable mental health patients from state hospitals made them essentially wards of the federal government, and the burden of ensuring counseling services, drug regimens, and support groups shifted. State hospitals were then able to reallocate their limited monies by cutting the available beds and focusing on patients who required long-term custodial care.

Over the decades, deinstitutionalization has worked for millions, but support services for discharged patients have varied from state to state. Many patients were released without proper preparation and lacked a strong support network; they became prone to extreme depression, suicidal ideations, and alcohol and drug addiction. Because the necessary community services were seldom coordinated sufficiently to provide a sustaining network, a distressing number of patients often returned again and again for short-term hospitalization. Others turned to crime, or were victims of crime, as they struggled to maintain residency and often ended up living in the street, thus vastly increasing the homeless population nationwide. Critics of deinstitutionalization maintain that the prison system has unfairly become the new alternative custodial care provider. More problematically, estimates indicate that the broader health care system realized very little economic benefit from deinstitutionalization. Experts have advocated a broad enhancement of the community mental health system to address the basic needs of those deinstitutionalized by ensuring they have stable living conditions, counseling support, low-cost medication, and steady employment.

Bibliography

Borus, J. F. “Sounding Board: Deinstitutionalization and the Chronically Mentally Ill.” New England Journal of Medicine, vol. 305, no. 6, 1981, pp. 339–42.

Kelly, Timothy A. Healing the Broken Mind: Transforming America’s Failed Mental Health System. New York UP, 2009.

Koyangai, Chris. Learning from History: Deinstitutionalization of People with Mental Illness as Precursor to Long-Term Care Reform. Kaiser Commission on Medicaid and the Uninsured, Aug. 2007, www.kff.org/wp-content/uploads/2013/01/7684.pdf. Accessed 25 Nov. 2024.

Lamb, Richard, and Linda E. Weinberger. Deinstitutionalization: Promise and Problems: New Directions in Mental Health. Jossey-Bass, 2001.

Ritter, Lois, and Shirley Manly Lampkin. Community Mental Health. Jones, 2010.

Rosenberg, Jessica, and Samuel Rosenberg. Community Mental Health: Challenges for the 21st Century. 3rd ed., Routledge, 2017.

Roth, Alisa. "The Truth about Deinstitutionalization." The Atlantic, 25 May 2021, www.theatlantic.com/health/archive/2021/05/truth-about-deinstitutionalization/618986/. Accessed 25 Nov. 2024.

Rowe, Michael, Martha Lawless, Kenneth Thompson, and Larry Davidson, editors. Classics of Community Psychiatry: Fifty Years of Public Mental Health outside the Hospital. Oxford UP, 2011.

Torrey, E. Fuller. “Documenting the Failure of Deinstitutionalization.” Psychiatry, vol. 73, no. 2, 2010, pp. 122–24.